Wednesday, July 30, 2014

Day 327- I Was Right

Well I was right, I did feel a flare coming. Hopefully this doesn't get any worse or last long.

 The usual trouble spots. MY RASH BEARD! The inside of my arms and wrists got hit this time around as well. The outside of my arms look pretty decent though.

 And my feet. :( I did some damage.... but this has been much worse....Please don't last long!

Wednesday, July 23, 2014

Day 320-Harry Potter Symphony

Hey everyone! How goes? I'm okay. I feel itchy, like a flare is coming on itchy. But it's not here yet so I better keep living before it comes back and STEALS MY LIFE FROM ME!!!

But even with my skin fighting, Ian and I were able to go out for a special date day. We went and saw a symphony where the whole program was Harry Potter music. It was awesome! However they "sorted" people into their houses with little flags which you were supposed to wave when your house got points. I did not participate because I AM NOT A RAVENCLAW! And I will not help my competition.

 The childrens hospital is sponsoring a geek summer fest. The next one we plan to see is the Animaniacs Set! Should be awesome! But enough yappin. Here's some pics!

And just for fun here's one I took by accident. :P

Wednesday, July 16, 2014

Day 313

Just a quick update. I don't spend as much time on the computer now a days and I try not to let my skin bother me as much. My skin is in fairly decent shape and a lot of the cuts on my face are healing up finally. A struggle while I sleep.

How is your skin doing?

Monday, July 7, 2014

304-Month 10 of Topical Steroid Withdrawal

Well it's finally here! Here I am on the 10th month of Topical Steroid Withdrawal and while things are still pretty icky I've been way worse! No new damage just slow healing. At 10 months the upkeep with my skin is very little. I no longer have trouble with my temperature other then seeming to heat up faster then most people. I also started sweating more, which is odd since I never really sweat, even as a child. 
Muh Face!

Look at my beautiful healing feet!!!!I even painted my toenails!! 
Something I haven't done in YEARS. 

At month 10 there are somethings I still do and some I don't.
I'm still moisturizer-less, and I still only bathe once a week in a Dead Sea Salt bath. 
But I get more sleep, I don't lose my cool anymore. I'm able to go to the store and pick up something without having to spend a half hour to an hour to get ready. 
But I still get hives all the time, I may have started to eat a bit more junk and processed foods then I usually do...
I only have to use Benadryl in emergencies. Otherwise the only medication I use for pain is marijuana, which I've cut done on a bit.
Hows everyone else fairing?

Friday, July 4, 2014

Day 301- Happy Independence Day!

Happy 4th of July everyone! How was yours? This would be the third year in the row we've gone without seeing fireworks. :( What did you do for yours? Ian and I both worked. Boo. But we're grateful for our jobs. :) 

Anyway here are a few photos I took, my skin is still healing but for the most part no new damage. The stingers aren't too bad, and with the help of doxepin I am sleeping all the way through the night.