Wednesday, October 15, 2014

Day 404

I'm just trying to heal and minimize the damage I cause. It seems like it's a constant battle.
I was hoping I would be better than this at year....
Better than I used to be though...

Thursday, October 9, 2014

Day 397- Year 2 Month 1

Two days off, but here's the monthly anniversary update!
Lately I've been having some pretty bad skin spilts on my fingers and and writs. So in order to help keep some of them clean and aid their healing I but band-aids on them. Unfortunately the adhesive on the band aids really irritate my skin, so I have to be careful.  Otherwise something like this can happen.

This guy is going to take forever to heal!

Here I am on my lunch, things are looking a lot better and even though my legs still look awful, they're doing better.

 I may look into a light moisturizer. I'm to scared to try coconut oil since that gave me hives last time (although it may have been to early in my withdrawal for that)
What are you guys using?

Also I've seen a LOT of girls on instagram who are using make up on top of their TSA skin. I don't know/think my skin could handle that but it would be nice to feel pretty again. But I don't know if feeling pretty for a few hours is worth the trade of of damage it may cause...
Any TSW sufferers out there wear make up? What kind do you use?

Thursday, October 2, 2014

Infection! Day 390

Well it finally happened. I had to break down and go and get antibiotics. The cold that only took Ian two or three days to get over took me a week, almost two. In that time my legs got even worse. For a few days I couldn't walk. I couldn't bend my legs due to the extreme amount of pain. 

I kept them at a slight bend and walked around like a raptor or a pray mantis.

Similar to this, I also turned some heads.

I even had a co worker and pick me up and take me to my seat cause I was so slow and she felt bad for me. My co workers have been very helpful in trying to keep my walking to a minimum.

So I went to a near by urgent care and it all went fairly well. He wasn't pushy and could tell I had already tried it all. He was curious of topical steroid withdrawal, but you could tell it was his first time hearing about it. He could tell what I had was eczema like, but he was pushing for lichen planus but after a quick look over he could tell it wasn't. I've had Lichen Planus before, while the itching is similar in being unbearable and it takes for ever for things to heal, AND it takes about two years to end... The wounds are different and SYMMETRICAL! It's crazy! 

He asked me why I thought I had an infection and was very nice, basically said good luck and hope you get better, with a round of Keflex.

This isn't the best photo, I'm right out of the bath. But this was day one of Keflex.

After two days everything started shedding and not just my legs. My face, neck, everything started to flake. (Check out all the hives/little red dots on my leg)

 So...hopefully this gets better. Here's to being positive and hoping the meds help!